Friday, January 23, 2015

The Perfect Storm

You never want to hear someone use the saying, "the perfect storm" in regards to medicine that was to be overnighted for use on Sunday morning.  Today after school I was feeling exhausted.  I actually stopped in the room of a friend and rocked in her rocking chair for a few minutes because I was SO tired!! Then, I went back to my classroom and started working .  Suddenly our secretary called down and said that I had a phone call.  I was very confused because it was Friday afternoon and I wasn't expecting any calls.  It was CVS specialty pharmacy calling about the medication that was supposed to be shipped out today for delivery tomorrow.  The very nice gentleman on the other end of the call told me that there was just a generic version of my medication released. (Awesome!!!... I am assuming at that point that it just means I will save money!!)  Then he says, "When we made the test claim there were no problems, but as we went to bill your insurance today we realized that your medication co-pay jumped due to the generic being available.  I don't want to you have to pay those high prices, but unfortunately we do not carry the generic medication and I know you need this medicine to be delivered tomorrow for use on Sunday morning."  UGH!!!!  (At this point I am so thankful that he has called to inform me of this that I just keep thanking him, yet I am so confused about what is going on and how I will get my meds. )  He tells me that he is willing to call pharmacies in the area to see if any of them have the generic medications in their inventory.  (WHAT?!?! WOW!!! This is awesome!! This is going to work out!!!) I thank him a gazillion more times and he says that he will call me back after he calls the pharmacies.  I ask him if he will be calling the work number again and he tells me that it is the number he has for me. I give him the cell phone number and he says that it is not in my file.  SUPER weird!!! So, I wait for him to call back and when he does he says, "I was able to find the generic medication at Walgreens in Galesburg.  They only have 2 boxes, but they will order the remainder of your script so that you have what you need." AWESOME!!! Then he says, "But, the problem is that your script says to dispense as written, which means that we cannot transfer your prescription and we cannot get you the generic with it."  AHHHHHH!!! You've got to be kidding me.  "I have already called your doctor's office, but no one is available to speak with me about this and the deadline for sending meds out for you is 5 p.m. CST."  CRAP!! CRAP!! CRAP!! "I understand that you need the medication, if you are unable to contact your doctor's office we could just send one box of the medication so that you will not have to pay AS much and then it will give you some time to figure this out.  You really got caught up in The Perfect Storm because the generic came out just as you needed refills and your script was written so specifically."  AHHHH!!!!  The perfect storm is not what I was looking to be hit with! :(  So, I called and left a message on the voicemail of the IVF coordinator and then began to FREAK OUT!!! It was after 4:00 at this point and I know that the office closes at 4:30.  After waiting for 10 or 15 minutes I decided to call another person at the office to see if they were available to help me.  The woman called me back earlier this week and said, "If you have any further questions call me back."  So, I called and told them that I was calling her back!  ;)  That got me right through!!! :)  So, she listened to my situation and attempted to figure out what we needed to do.  (I have no reception in my classroom, so at this point I decided to leave my work behind and head home... my stress level was shooting through the roof and I wasn't getting anything done sitting in the room across the hall so that I had reception!)  As I talked to the nurse she put me on hold to talk to the IVF coordinator. Then she got back on and said that she was uncertain of the quality of the generic meds because they are so new.  She said that they would let me try them because of the issue with getting the name brand covered.  Then she told me that she would attempt to call the meds in and then call me back to confirm if everything was set up.  I looked at the time and it was almost 4:30.  I was really panicking and I was just down the street from my house.  Mike was pulling out of our driveway to go to work and he rolled down his window to see what I was up to.  I told him about my panicky moments and told him that I was waiting to see if they would be able to figure things out for me.  His response... "Well, I have to get to work." And, he drove away after telling me he would see me later.  UGHHHHHH!!!!! I know that he has no idea how stressed I was or that I was already hanging on by a thread, so I will cut him slack NOW, but at the time I just wanted to cry!!! I pulled into the driveway and the woman called me to say that she got ahold of the pharmacy in Galesburg and they would have enough meds to cover me until they could get an order in.  PHEW!!! She then said, "If things do not work out, remember that we have an on call nurse that you can talk to who can help you." WHAT!?!?!??! And my response was, "WHAT?!? I didn't know that! REALLY?!?!??!"  She then said, "Yes, you just follow the prompts when you call the number after hours." Again I said, "WHAT!!! I had no idea!"  Why didn't they tell me this before?  Why didn't they tell me this last cycle when I lost the two embryos... one would think that they would have said, "If you ever have bleeding like this again PLEASE call the on call number."  Why did I not realzie that the 2nd option of the after hours message meant to leave a message for someone that was on call.  Why didn't other patients I talked to know this either?!?!  Anyway... I am glad to know for future reference that there is an on call nurse.  I know that there is nothing that I can do to change the past, so I am just going to have to move forward with this knowledge and be thankful that it is now available.  After talking to her I headed to Galesburg to have dinner with my mom, sister, and Grampy.  On the way there I started having icky cramping.  It totally freaked me out.  TOTALLY FREAKED me out.  I had to call a friend who has been through this and have her talk me out of hysteria.  In the end I was able to get the meds and my cramping has calmed down, but WOW!! What a day.  Mike will be home in less than an hour and luckily everything has been settled and there is no need for further panic.  Time to relax and try to destress from a long day.  I just keep reminding myself that it will all be worth it someday!!! :)

Though there were many things about today that were super stressful and not ideal, there were some awesome things as well:  An amazing friend brought scotcharoos to school with a sweet note to enjoy the sweet treats and to think happy thoughts for me and the two embryos that we hope are growing and growing and growing (what a nice surprise!!), the man from CVS was SO helpful and amazing, dinner at taco hideout was delicious, and in the end my new meds were only $7!!!! Yep, how is that for AMAZING!!!! :)  So, once again there is a lot of good amongst the ick of this process!! :)

Have a great weekend!  Hopefully mine is very uneventful!!! ;)

Tuesday, January 20, 2015

Transfer Day - 1/20/15

Yesterday I was a nervous wreck!  I was so anxious that Mike had to drive to DeKalb.  Anyone who knows us well knows that I am the driver in this relationship!! I get car sick VERY easily and I also get nervous as a passenger... it didn't matter to me yesterday because it felt like I had an elephant on my chest.  Shockingly,  today started off with much less anxiety.  I woke up and took my my oral estrogen and decided that it was best if I went back to sleep for a while instead of sitting in the dark, quiet hotel room.  So, that is what I did!!!

The drive to the clinic was very uneventful!  It was a dreary morning, but we didn't really notice because we were just ready to get there and get the morning started!  There really wasn't any waiting once we walked in the door.  They called us into the business office to let us know that we needed to pay for the next 3 months of embryo storage before our procedure today.  OH!! That was a little bit of a surprise!  But, I have realized that this is all just part of the process... surprise bills!! ;)

Next the awesome nurse that we met during my previous transfer came in and prepped us for after care.  She told me that I needed to be on bedrest today and tomorrow.  She told me about the restrictions that I have: no lifting of over 10 pounds, no standing for prolonged periods of time, no exertion, be as sedentary as possible, avoid stress, etc.  She also reminded me of the importance of continuing all of my medications at the correct times.  Then she said that the embryologist was ready to see us to give us the latest update on our embryos.  At that point I really didn't know what to expect.  When we elected to freeze all 5 of our embryos rather than discard the 2 level C embryos they told us that they didn't think that the level C embryos would survive the thaw.  So, I was prepared for him to tell us that they had to thaw another vial to achieve the 2 viable embryos that we planned to transfer.  When the embryologist walked in and told us that both embryos thawed it completely validated the fact that we made the right choice!! The embryologist then told us that the level C embryo is not very likely to make it and that the other embryo looked really good.  That didn't phase me!  I can only hope that our little C embryo has inherited every ounce of stubbornness that it's mommy and daddy have and that it uses that stubborn streak to prove him wrong!! At that point I looked at Mike and said that we did the right thing and that it was going to be a fighter! We signed the paperwork showing that we were using 2 of our 5 embryos and they he went off to prepare the embryos for the transfer!

At that point, the nurse came back in with Dr. S. so that they could do an external sonogram to see if my bladder was full.  It was!! I definitely knew that to be true and I was already counting the moments until I could get to the bathroom!! They then did all the super fun things that happen to prepare me for the procedure, including using the crazy leg contraptions that make the usual stirups look like a walk in the park!! I will spare you the details of all of that, but I will say that he determined that my cervix is very irritated from all of the procedures that have been happening.  He said that he thinks that it is the culprit of all of my unexplained bleeding.  I said that it wouldn't surprise me because I have already had to have surgery on it.  He didn't realize that and said that it wouldn't be surprising to him if I had some spotting throughout the day due to all that happened to complete the transfer.  Thankfully I did not experience spotting and I hope that things continue that way!!! I am a little nervous that I will continue to have issues with my cervix throughout this process.  I am not sure what we can do to make it happier, but hopefully it stops getting irritated very soon!!! ;)

Once we were all set up and everything was in place they called for the embryologist and he brought in the catheter containing our embryos.  Thankfully the process went very smoothly and the prep ended up being the most painful part of the process.  Then the embryologist took the catheter to flush it and determine if both embryos successfully were transferred and we got the "all clear"!! What a wonderful feeling!!! :)  Dr, S. then removed all of the evil equiptment and started chatting with us about various things.  He is such a wonderful person!  I really enjoy him and feel that he really cares!  We shared some laughs about the various shows that depict infertility treatment and the fact that they give false impressions of what the process actually looks like. I hadn't thought about it until he mentioned it and it is true.  So many people feel that they have knowledge about the way things happen because of shows and movies like he mentioned that have storylines regarding infertility or surrogates.  He said, "Now you know what really happens and you will watch things differently like I do."  It is so true.  Things are so simplified and shown incorrectly... I had never noticed!! Another reason that it is important for me to continue my blog!!! :)  Thanks Dr. S. for the validation!! :)  Hopefully it doesn't ruin shows for me like it does for him!! He also joked many times throughout the procedure that Mike was free to experience all of the things I was experiencing so that he had complete sympathy! HAHAH!! Mike assured that he was aware that he didn't want to do these things! :)  It was so refreshing to be relaxed and joking during this procedure and after the procedure because it is such an intense process that it is easy to stress.  And NO STRESS is on my restrictions sheet!! ;)

They told us that our 30 minute wait had already started and then they reminded me that I was free to go directly to the bathroom once the clock hit 11:35!  Time stands still when you have been through a procedure like that and can't use the bathroom... add a full bladder and time seems to go in reverse!  HAHH!!! The embryologist came in to see if we had any questions before they left us to wait and I asked him if he had pictures of my embryos.  Unfortnately they don't take pictures of the embryos, so I could'nt get a "babies first picture" from the earliest stages.  BOO!! I thought it would be cool to have that in the baby book if this is successful.  But, no big deal!  I am sure I could add something awesome like a print out of our facebook post with all of the amazing comments from people supporting us!! :)

When 11:35 hit I was thrilled!!! Mike went and got the car and I took care of important business!! :)  As I walked out of the office it took everything in me not to stop every other person in the building to tell them my exciting news... afterall, Mike wasn't next to me to be embarrassed by my craziness!!! ;) But, I refrained! We got on the road and realized that the weather was REALLY icky!!! Mike evern used my favorite description for ickiness, "craptastic"!!  It was foggy, cold, rainy, YUCK!!! I said, well, even more of a reason for these little ones to get cozy!! :)

We stopped for lunch at Culver's so that I could enjoy my favorite fries!!! Then we headed for home! Once we got home I quickly realized that all of the excitement of the day had exhausted me!!! I cuddled under a blanket on the couch and slept for 2 and 1/2 hours!!!

I cannot thank you enough for your support, love, and prayers!  We are so grateful for all of you and we thank you in advance for your continued thoughts and prayers as we wait to see if this is going to be successful.  I am doing everything they told me to do and Mike is making sure that I am taken care of.  He is great about confirming that someone is able to take care of me when he has to be at work or that we have a place to do shots when we have to be away from home.  Though this isn't a journey that I ever imagined we would have to face, I am thankful that we are facing it with so much support and love surrounding us! What lucky kiddos we will have!! They were loved SO much before they were even possible!

Have a wonderful evening! I will keep you posted on any new developments and probably just some state of mind posts as we continue to take this day by day until we know more!!

Monday, January 19, 2015

Anxiety

I have had horrible anxiety today.  I am so afraid that I will start bleeding before we can implant the embryos.  I am supposed to call right away if this happens because they will thaw the embryos tomorrow morning.  Crazy fact: it takes less than an hour to thaw the embryos! Who knew it was that quick!?!?! I know that the anxiety is not helping my body and that it could actually cause me to start bleeding, but it is so hard to stay calm.  This morning I was having a full blown panic attack.  My chest felt like it was going to explode and I felt like I couldn't breath.  It was terrible, but definitely not the worst I have had.

I am thankful that I was able to get some things done at school today.  Now I am going to see if a nice shower will calm me down and then I am going to do a little cleaning before we hit the road for Rockford... hmm... I guess I should probably pack, too!!! ;)

Have a great day and thank you for your continued support and prayers!!


Sunday, January 18, 2015

Friday's appointment

Friday's appointment went very well.  We are cleared to go to Rockford for Tuesday's embryo transfer as long as I don't have any additional bleeding!  We had Dr. S. instead of Dr. G on Friday, which I thought was good because Dr. S. will be doing Tuesday's procedure.  The strange thing is that like Dr. G., Dr. S. cannot explain the bleeding.  He asked several times if I was sure about the bleeding... not in a condescending way, but in an "I have no explanation" type of way.  He said that my lining looks beautful and that it shouldn't after what I described.  He said that he has never seen anything like this before and he said that he doesn't want me to believe that it was my lining.  He said it had to be some other type of bleeding.  Mike's response, "Maybe someday they will determine what species you are!" I can't even count the number of times that they have told me that things that happened to me have "never been seen before".  I think I would be more shocked if they told me that something was completely normal! ;)  

So, we will leave tomorrow for Rockford, making a stop in DeKalb to visit the Schroeders! Then we will stay at the hotel and head over to Reproductive Health at 10:30 for an 11:00 a.m. transfer.  Our hope is to transfer 2 embryos on Tuesday.  We have a plan to start by thawing vial #1 first, which contains a B embryo and a C embryo.  If both of them survive the thaw they will implant them.  If only one makes it they will thaw the single B embryo in vial #3 and hope that it survives the thaw so that we have 2 embryos to implant.  If neither embryo from vial #1 survives we will thaw vial #2 which contains a B embryo and a C embryo.  My other option was to thaw all 5 embryos and let them culture to blastocysts and implant the strongest embryos.  I elected not to do that because I have been told that it is possible that the embryos have a better shot of surviving in their natural environment (my uterus) than they do culturing.  

After the transfer I will have bedrest until Thursday morning.  Then I will have restricts which will prevent me from lifting, exercising, sudden movements, etc.  It is so interesting to me how different the beginning of an IVF pregnancy is than the beginning of a natural pregnancy, but I believe that it is due to the fact that the pregnancy is being supported by injested hormones instead of natural hormones.  Hopefully we will find out early to mid February whether we have a new little Valentine/Valentines to celebrate!! :)  

Thank you for your continued support!  I appreciate everyone who has checked in with me to see how Friday went and everyone who has continued to pray for us and has kept us in their thoughts regularly!! Now I am off to visit Mike's cousin so she can give me my progesterone injection!  :)  I appreciate her help SO much when Mike is working! :)  

Have a great night! 

Tuesday, January 13, 2015

1/12/15 appointment

Well, the wait continues.  We have an appointment set for Friday to determine if we will be able to implant on Tuesday.  We went to the appointment yesterday and the doctor initially said that my lining looked beautiful.  I was SHOCKED!!! I said, "Really?!?!?!  Even after all of the bleeding and clotting that I had?" At that point he looked at me like he had no idea what I was talking about and I realized that yet again he didn't realize who I was.  So, I told him that I had been bleeding heavily and that he had prescribed oral estrogen to be added to my protocol.  He said, "Oh, you're that person."  YEP!!! That's me!  (That is exactly what I said actually!) I am THAT person.  UGH!!!!! Is it too much to ask for the man to look at my chart before coming in and doing the internal sonogram?!?!? Seriously?!?!?  I realize that this is not HIS journey, but this has been over 5 years of my life and I wish that he was the tiniest bit invested in it... too much to ask?!?!? I don't think so, but maybe it is... So, at that point he said that though my lining looks beautiful he does not know if it is growing or thinning, so I have to go back on Friday to "assure that the bleeding is behind us".  At that point they will let me know if we are good to go.  Hopefully things will work out so that we can move forward.  Not only am I anxious to keep this process moving, we had to order our progesterone and it only has a 30 day stability.  So, if the cycle is cancelled our meds will expire before we are able to try again.  AND, once again we were denied insurance coverage for the progesterone.  GRRR!!! I was in a meeting when they called to let us know that it was denied, so by the time I found out what was going on it was too late to call the insurance company and we had to make a decision.  We decided to pay out of pocket so that we are prepared in the event that we get to move forward.  I hope to be able to get ahold of someone there and find out 1.  why they didn't cover it... and 2.  why they told a representative from my school that it would be covered after I posted about the previous denial in a blog post and why they said that the previous denial was a mistake due to a coding error by the pharmacy... I cannot believe the nightmare that this has continued to be!  It really shouldn't be this hard... the process is hard enough without all of this additional crap!!!  In the grand scheme of things the cost of this medication is minimal compared to what we have shelled out since June, but it is just the principle of the whole thing that frustrates me to no end.  I feel like I have had the run around since June 1 and it gets old.  (I told myself that I was going to try to be more patient with them in the new year... that didn't last long!!!)

So, the next step is to keep up with the new protocol and to pray that the lining continues to grow beautifully.  (I saw the ultrasound and it really did look awesome... so hopefully it was growing and not shedding!  It looks like a cozy home for the babes that are frozen up in Rockford!!)  Thankfully I know that my school kiddos are in excellent hands and that my plans will be well executed by wonderful people when I am gone!  It is so reassuring to know that we have amazing substitutes to cover when we have to be gone! :)

Thank you for your continued support!! Prayers and good thoughts for a successful appointment on Friday would be much appreciated!!

Friday, January 9, 2015

AGAIN?!?!??!

I would have to be crazy to think that we could make it through a cycle without a hitch... the beginning of this cycle started with me feeling really sick and having a rough time, so I thought that maybe that would be the rough patch, but unfortunately it wasn't.  Last Friday I started spotting and after it continued through the weekend I called my specialist's office on Monday.  When they called back I was shocked to hear that it was normal and that my body was responding the way that it should!! WOOHOO!!! How exciting!!  The spotting continued and I didn't get alarmed until today when I felt terrible after my morning injection.  I was dizzy and the injection itself was pretty painful.  I had a hard time getting my estrogen patches changed because I was so dizzy that I had to recline on the couch between each of the 4 patches.  I decided to try to go back to bed to see how I felt when I woke up.  After my snooze I was still feeling exhausted, but no longer dizzy.  Then, instead of spotting, the bleeding intensified.  I called the specialist again to see what was going on.  They said that I need to start taking oral estrogen along with the estrogen patches to see if that will help the situation.  They told me to definitely start taking the medication tonight and we will see what is going on with my lining on Monday at my appointment. Hopefully the addition of this medication twice daily will help to get my lining to the point it needs to be at.  I really don't understand why my body doesn't like to absorb gels or things from patches, but this is getting a bit ridiculous.  I can't imagine that this cycle will remain on schedule after the way my body has responded, but I hope that the new medication sends us in the right direction.  I am so glad that I trusted my instincts and determined that this was not normal.  Before Mike left for work I was talking to him about the fact that I hate calling and bothering the doctor's office, but I also feel like every time I call it turns out to be something that is legitimately wrong.  The lady at the office was very nice and told me that I shouldn't ever hesitate to call... I just wish that things would start going right at some point so that I didn't have to!
Tomorrow is my sister's Iowa baby shower.  Hopefully these new meds kick in and help me to feel a lot better so that I am up for the long drive.  There is no way that I would have been able to make the trip if it was today.  I am so thankful that this has been a week of "snow days" so that I could feel icky at home instead of at school!  It really stinks to feel SO crappy and have nothing to show for it except for a HUGE list of scary risks and side effects that all of these medications have on their pamphlets.  I keep telling myself that someday I will understand the timing of all of this.  And someday I will understand why we had to jump through all of these hoops.  But, right now, this journey is just really frustrating!! So, now I will go back to binge watching Revenge and making adorable things for my niece - Baby K!!
Have a great weekend! I will update after Monday's appointment.  Prayers that my lining will miraculously be beautiful and ready for embryos on the 20th!! As always, thank you for your support!